From my Mommy:
Loving and Parenting a child with special needs:
celebrating the small things
cringing when someone asks is she walking/talking yet
seeing beauty that you couldn't before
knowing the best route to the emergency room
getting an amateur medical degree
being able to spout off the signs of shunt malfunction in your sleep
learning to deal with the stares or questions
using acronyms with ease- CT, MRI, ST, IEP, IFSP, NS, ENT
being able to not only pronounce, but spell big medical words- hydrocephalus, colloid cyst, cochlear implants
hoping for the best, but always prepared for the worst
realizing you were wrong about things
changing your priorities
learning that you were never really in control
being amazed everyday at all the things accomplished that you were terrified would never be
Loving and Parenting a child with special needs:
celebrating the small things
cringing when someone asks is she walking/talking yet
seeing beauty that you couldn't before
knowing the best route to the emergency room
getting an amateur medical degree
being able to spout off the signs of shunt malfunction in your sleep
learning to deal with the stares or questions
using acronyms with ease- CT, MRI, ST, IEP, IFSP, NS, ENT
being able to not only pronounce, but spell big medical words- hydrocephalus, colloid cyst, cochlear implants
hoping for the best, but always prepared for the worst
realizing you were wrong about things
changing your priorities
learning that you were never really in control
being amazed everyday at all the things accomplished that you were terrified would never be
It's all been worth it Nola - We love you more than you can imagine.
*I borrowed this list from another hydrocephalus mom (sherrilee.wordpress.com) .... and added a few of my own as well*
*I borrowed this list from another hydrocephalus mom (sherrilee.wordpress.com) .... and added a few of my own as well*
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