"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11


Special Needs

From my Mommy:

Loving and Parenting a child with special needs:

celebrating the small things

cringing when someone asks is she walking/talking yet

seeing beauty that you couldn't before

knowing the best route to the emergency room

getting an amateur medical degree

being able to spout off the signs of shunt malfunction in your sleep

learning to deal with the stares or questions

using acronyms with ease- CT, MRI, ST, IEP, IFSP, NS, ENT

being able to not only pronounce, but spell big medical words- hydrocephalus, colloid cyst, cochlear implants

hoping for the best, but always prepared for the worst

realizing you were wrong about things

changing your priorities

learning that you were never really in control

being amazed everyday at all the things accomplished that you were terrified would never be
It's all been worth it Nola - We love you more than you can imagine.
*I borrowed this list from another hydrocephalus mom (sherrilee.wordpress.com) .... and added a few of my own as well*

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