We were asked to speak at St. Agnes Idol and share our story. I was so honored that they would ask us to do this! As you know, we hold LeBonheur near and dear to our hearts!
This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
How a Shunt Works
Silas
Nola
Time Nola has been a part of the Hearing World
- Nola's Journey
- Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
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