Christmas Part 1 was at Mimi & Big Dad's house! We were joined by Uncle Chris, Aunt Amber, Tristan, Addison, Aunt Lindsay, Uncle Nick, Billy, & Grandma Perkins!
This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
How a Shunt Works
Silas
Nola
Time Nola has been a part of the Hearing World
- Nola's Journey
- Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
5 comments:
What are those chair things there sitting in? I thought they were potty chairs at first.LOL!!
They are called billibo seats. My sister-in-law got them for Nola and Billy. They are hilarious! You can sit in them, turn them over and sit on it etc. They are pretty neat!
Never seen them here in Mo. Do you know where she bought them?
The Knowledge Tree- Do you have those stores there? Its a teacher/education store
No,but I googled it and found them on Amazon.com.I will keep looking.I will see if the knowledge tree has a website.Thanks
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