Daddy took this picture while I was PACU recovery at LeBonheur. Ms. Britney said only I could make a purple turban look cute!
12.15.2009
12.13.2009
11.28.2009
Subsidium's 2009 Carrousel of Shoppes!!
The Subsidium's annual fundraiser for my school is December 3,4, & 5! As you can see, I made the picture! Look for me on billboards on Germantown Parkway and Poplar Avenue!
"A Weekend of Shopping Gives a Lifetime of Sound!"
11.11.2009
Pumpkin Run & Team Nola Gracyn were a huge success!!
Team Nola Gracyn raised over $3100!! We are so grateful to all those who participated in any way! Thank you to all of you who donated, ran, or bought a t-shirt! Our team tripled from last year! And we cannot wait until Pumpkin Run 2010!
10.08.2009
I will be 2 tomorrow!!
This is an exciting weekend for me! I am turning 2 tomorrow! I am having a birthday party at MOSD with all my friend there. Then we are attending the Pumpkin Run in the morning and after that, we have my birthday party with all of my family!! I am so excited! This has been a great week not only for me, but also for our quest to get the word out about the great things done at LeBonheur and MOSD!!
I'm on TV!!
We had the opportunity to talk about Nola's story and LeBonheur on Live at 9 on Channel 3!
Click on the link to download the video! Make sure you click regular download so they don't try to charge you $3!
http://www.sendspace.com/file/jme8kd
Click on the link to download the video! Make sure you click regular download so they don't try to charge you $3!
http://www.sendspace.com/file/jme8kd
10.03.2009
Reminiscing
My Mommy was reminiscing about all that we have gone through over the last 2 years. This bible verse is perfect. Nola is fearfully and wonderfully made- she was given to us by God and our duty is to show her how beautifully and wonderfully made she is.
I will praise You,for I am fearfully and wonderfully made;Marvelous are Your works-
Psalms139:14
I will praise You,for I am fearfully and wonderfully made;Marvelous are Your works-
Psalms139:14
Busy Week Ahead!
This week is going to be busy! My birthday is Friday! I will be 2!! I get to have a party at my school with all my friends. Saturday is the LeBonheur Pumpkin Run; and boy do we have a large team this year! Hopefully it will continue to grow each year. LeBonheur is such a special place to me and my family. Then Saturday afternoon will be my family birthday party! Yay for me- I am turning 2!!
9.27.2009
Lots of Exciting Events Coming!!
There are so many exciting things coming up in the next few weeks!! I will turn 2 years old on October 9! Before you know it I will be ready to drive! I will have a birthday party at MOSD on the day of my birthday with all my school friends. On October 10 is the LeBonheur Pumpkin Run! Mommy and Daddy are so excited about our team this year! We have 55 shirts ordered! And about 25 people signed up to participate in the run! We have had gracious people who have donated towards this great event! We still lack around $2000 in meeting our goal! GO TEAM NOLA GRACYN!
9.03.2009
99% Brain
This is the prettiest CT scan my Mommy & Daddy has ever seen! Only a few months ago I still had alot of fluid- but look at my pretty brain now!
9.01.2009
TEAM NOLA GRACYN
LeBonheur's Pumpkin Run is coming close! You can help support the WONDERFUL hospital that took such great care of me during all my surgeries and tests!
www.pumpkinrun.org
Click on Support our participants and find my Mommy or Daddy's name. Click Donate!
www.pumpkinrun.org
Click on Support our participants and find my Mommy or Daddy's name. Click Donate!
I have no fear!
I will jump off the diving board now! Of course, I jump into Daddy's arms! It is so much fun- Look at my face!
Memphis Botanical Gardens
I went to the Memphis Botanical Gardens. They have a new thing just for kids. I loved it- especially the weather place where it rained! I love water!
8.15.2009
It's that time again!
It's time once again for the LeBonheur Pumpkin Run! It will will be Saturday, October 10. We will once again have a Team Nola Gracyn and will be ordering shirts! Please check back for more information soon!
I'm a big school girl
I started my first day of MOSD on Thursday. I didn't cry- My Mommy & Daddy did though. Thank goodness they held it together until they got into the car! I did all kinds of great things my first 2 days of school. My teacher's name is Ms. Sue and she is a happy and loving lady! Ms. Schwartz is the director and she is beyond helpful. . In fact, Mommy & Daddy said they have not met someone who is not helpful and kind at my school. My speech therapist's name is Ms. Courtney and my listening therapist's (aural habilitation) name is Ms. Nathalie. I will be learning to listen and talk. I should get my hearing aids in the next week or so.
Mommy & Daddy say I am doing such a great job already!
Mommy & Daddy say I am doing such a great job already!
8.01.2009
MOSD
Nola will be attending the Memphis Oral School for the Deaf starting August 13. She has been fitted for her hearing aids and the ear molds even have glitter in them! Visit their website www.mosdkids.org to learn more about this AMAZING school where deaf children are talking.
You can also help their cause by purchasing a brick that will be placed on the sidewalk outside of the school. http://www.mosdkids.org/Details.cfm?ProdID=37&category=0
7.29.2009
National Hydrocephalus Month!
AT 3:38pm, H. RES 373 Passed by a voice vote! September is officially NATIONAL HYDROCEPHALUS AWARENESS MONTH! Thank you PHF, Inc, Congresswoman Bachmann, Congressman Lance, the 88 other Co-sponsors, the rest of the U.S. House of Representatives and everyone who made this a reality! WE DID IT!!!! :)
7.28.2009
Hearing
We had more testing and I do have hearing loss. What degree or the type is not diagnosed yet. Me, Mommy, & Daddy will go to an ENT doctor on the 21st and then we will go back to LeBonhuer for another test. Whew! All this testing.
7.24.2009
More Testing
We went to LeBonheur to have my hearing checked because Mommy & Daddy were concerned about it. The tests were not very encouraging, but we are going back on Monday for a test called ABR. Mommy has to get me to go to sleep before they can start the test- so here's hoping I am sleepy on Monday morning!
7.08.2009
6.22.2009
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