This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
Jonathan - I am so proud and blessed to have you as my nephew. You are a wonderful daddy and husband. Nola is a precious gift from God and you are doing everything in your power to take special care of this special gift. I love you and I will be praying for you, Desiree and Nola each and everyday. Remember: You can do all things through God who strengthens you!
Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
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Jonathan - I am so proud and blessed to have you as my nephew. You are a wonderful daddy and husband. Nola is a precious gift from God and you are doing everything in your power to take special care of this special gift. I love you and I will be praying for you, Desiree and Nola each and everyday. Remember: You can do all things through God who strengthens you!
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