This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
How a Shunt Works
Silas
Nola
Time Nola has been a part of the Hearing World
- Nola's Journey
- Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
3 comments:
Cute picture! I love your outfit Nola!!
Aww thanks! My mom made it for her. Isn't it great! Last Christmas I bought one similar and it was $50. My mom made this one for less than $10!!
My mom makes the grandkids clothes too. Most of the shirts will not fit over Claire's head though.LOL!! Gotta have buttons or snaps for her.
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