I hear that I am going to have big feet. Mommy and Daddy were told not to get me any newborn shoes or socks! Mommy says it is Daddy's fault because he has flippers for feet. I suppose I am taking after Daddy on that trait - Mommy has little feet. Oh well - you will be able to hear me coming!
This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
How a Shunt Works
Silas
Nola
Time Nola has been a part of the Hearing World
- Nola's Journey
- Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
3 comments:
Hello, my sweet niece Nola Gracyn.
You may take after your cousin Anne. She had lots of booties but at birth her feet were too big to wear them. It gives you a firm foundation.
Looking forward to seeing and loving you,
Great-aunt Mary
Little lady...it's your Aunt Amber again...you may have some long little flippers, but based on your latest picture...it looks like those little legs have some length in them, too. (I guess you get that one from your daddy as well).
Well, Nola Gracyn,
Finally I was able to get here to leave you a note. The feet must come from another side because "our" side has delicate little feet!! (Well, maybe except for Nanny)
Long legs are good. Short stubs like mine are not so great. Have to cut off hems, etc.
I am looking forward to helping spoil you.
Aunt Jackie
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