This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
We got tickets through MOSD for the Redbirds baseball game last night; Nola has been so excited about going to see baseball like Tristan plays. The picture above is about the cutest thing I've ever seen! The only downfall to the Redbirds game is the dreaded Rocky the Redbird! Nola is terrified of ANY dressed-up character. Everytime Rocky came out, Mimi had to cover Nola's eyes. Nola said, " I no like that Rocky!"
Sweet Cousins!
After the baseball game, we headed to the Levitt Shell to hear Amy Lavere play at her new CD release party. Nola loved dancing!!
Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
1 comment:
adorable picture at the top!
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