This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
Our good friends, Andy and Deanna, got married on December 4. We were honored that they asked us to be a part of their special day! These two are special to us because they are Nola's Godparents. We chose them to be Nola's Godparents because they are two more people Nola can look to for role models. Nola was the most beautiful flower girl I have ever seen! We were concerned she would not walk down the aisle, but on the big day she did great! She walked down swinging her arm and then at the end she dumped all of her rose petals in a pile! It was priceless!!
Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
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