This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
(Oh yeah, this is me walking! I can do that now!)
I am almost 1! You should be getting your invitation to my 1st Birthday party any day now!
Mommy & Daddy can't believe its been a year already!!
I am getting to be a big girl and my Mommy doesn't like it. I can stand and play with my toys now, and my Mommy wonders where the time went.....seems like yesterday I came home from the hospital. I will be walking any day now!!
Don't forget to sign up to run/walk in the LeBonheur Pumpkin Run!!
If you do not plan on being there you can still support the team Nola Gracyn & LeBonheur by donating. Go to the website and look to the left. Click on "Support Our Participants." Scroll down to find someone who is on team Nola Gracyn and then click Donate! All the money goes to LeBonheur!!
My Mommy and Daddy say there are alot of people who prayed for me and sent good thoughts my way. So here are a few people I want to thank....
Grandmother, Poppa, Mimi, Big Dad, Uncle Chris, Aunt Amber, Aunt Denee', Great-Uncle James, Great-Aunt Rene', Great-Aunt Connie, Great-Uncle Rick, Dad, Great-Aunt Mary, Great-Aunt Julia, Cousin Beth, Cousin Steve, Grandma, Great-Aunt Tonya, Heather, April, Great-Aunt Jackie, Nanny, Mr. Darrell & Ms. Susan
Also, my wonderful nurses at LeBonheur: Ulla, Marla, Daphne, Cheri, Tamara, Chandra, Tonya
Last but not least: Dr. Muhlbauer
THANK YOU!!!!!
My Mommy and Daddy have been teaching me sign language. Here I am at Le Bonheur signing for more cheese. I love cheese!!!!
I made it through my surgery just fine. Although I had a few hiccups along the way, I am now back to my old self: Giggling like little girls should.
Playing with all my new toys. My Mommy's dear friends came to see me!
Poppa taking me for a ride in the wagon.
More fun in the wagon.
Grandmother giving me some good ol' soy milk.
My Mommy slept in the bed with me and Daddy slept in the chair beside us.
Still sleeping....
My Crib at LeBonheur
My toys
My balloons I got
Even though I may be small, I had some big adventures this summer!
Swimming in Mimi & Big Dad's pool with Daddy
Eating corn on the cob
Enjoying some coffee....
Watching the World Championships of Knock-Em
Having fun with Cousin Cindy & Aunt Charlotte
We just got back form my appt with Dr. Muhlbauer. My brain tissue is growing so much that it is starting to interfere with the proper drainage of my shunt. I will have surgery on August 20 to move my catheter in my shunt so that it is away from the growing tissue.
Please pray for me and my Mommy & Daddy.
My great Aunt Tonya bought me a bonnet. Mommy says it looks like the bonnet my Great-Grandmother Nola used to wear when she was gardening.
Happy 6 Month Birthday to Me, Happy 6 Month Birthday to Me, I'm a Big Girl and Still Growing, Happy 6 Month Birthday to Me!!!!!!!!!!
As all of you know, my Mommy likes to send everyone pictures. So all of you have seen my funny faces... well, here is another for your enjoyment! :)
Check out some of the pics from my special day. (There are more to come!)
