I have learned many things while being on the outside- I have learned what my Mommy and Daddy's face looks like. I have learned what those strange barking noises I always heard are coming from- they are furry and named Duke and Luckie. I have also learned I like to be swaddled like a little burrito- nice and snug as a bug in a rug. The greatest thing I have learned is there were many people who were praying for me. I know they continue to do so and I am an example of the miracle of prayer. Everyone says I am beautiful too!
This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
How a Shunt Works
Silas
Nola
Time Nola has been a part of the Hearing World
- Nola's Journey
- Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
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