This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
Great things are happening today! Nola starts speech therapy! Yay :)
4.22.2009
A thought from my Mommy!....
“The child must know that he is a miracle, that since the beginning of the world there hasn't been, and until the end of the world there will not be, another child like him.” -Pablo Casals
This quote I found really puts into words how I want Nola to feel. She is my little miracle and I want her to always know there is no one else like her and how special she really is. I want her to know I will work everyday to make sure she feels the love of those who surround her. Nola is my little ray of sunshine!! -Nola's Mommy
Now that it is getting warmer outside, I love to play until I cannot play anymore!
Mommy says she likes the picture showing my curls in the back. My hair on the right side still hasn't caught up with the left since it was shaved for my shunt revision surgery back in August. Mommy and Daddy say it will though.
Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!