This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
This dress was Jonathan's grandmother's dress back in the 70s I think. She is now in her 80s and Aunt Connie and Mimi were cleaning out her closet- They gave me this dress! I love it!!
Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
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