January 6 is an important day in our family's life! One year ago tomorrow, Nola entered the hearing world when her cochlear implants were activated!! What an amazing year this has been. She has come so far. There are not enough adjectives to describe the pride and love I feel for this little girl! She is talking in complete sentences. She tells you what she thinks, what she feels, and what she hears and sees. What a miracle this is!!
Thank you Dr. MacDonald for performing the surgery, thank you MOSD for your priceless work with Nola, thank you to all our family and friends who have been there to support not only Nola, but also Jonathan and me through this process. Who would have thought we would be where we are now?! Getting a diagnosis of profound hearing loss is not the end of the world (the exact feeling I felt when I heard those words) this was the beginning of a whole new chapter in our journey.
Thank you Nola for all your hard work! You are my light and your Daddy and I love you to pieces.
This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
How a Shunt Works
Silas
Nola
Time Nola has been a part of the Hearing World
- Nola's Journey
- Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
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