This is the prettiest CT scan my Mommy & Daddy has ever seen! Only a few months ago I still had alot of fluid- but look at my pretty brain now!
This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
How a Shunt Works
Silas
Nola
Time Nola has been a part of the Hearing World
- Nola's Journey
- Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!
4 comments:
Beautiful!
The doctor never gave us any of Claire's c.t pictures, maybe next time.
That is a good idea to keep the cd. I will ask her doctor in a couple of weeks, that pad andcover I found on craigslist , it is made by twiddlewinks?
The nurse said that her head being puffy when she sleeps is normal,something about airways and laying down,as long as there is no fever or vomitting they said there not worried.
Looking fantastic!~
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