Daddy's Article in the Commercial Appeal!

Here is the link to Daddy's article in the Commercial Appeal. We have gotten such a great response from this article!!


http://www.commercialappeal.com/news/2010/jan/31/my-words-words-of-love-begin-to-answer-heartache/

Did you know?

It costs Nola's school -Memphis Oral School for the Deaf- $40,000 per year per child for all the services they provide!!!

Check it out! http://www.mosdkids.org/

Snow Day 2010!!!

It snowed at my house!! Mommy and I had a lovely snow day off from school on Friday. Daddy got over the flu (yuck!)- so we went out for just a little while so I could play in it!

My favorite part was eating the snow! Yum, yum!

Did you know?

Hydrocephalus is the most common reason for brain surgery in children.

The Federal government spends less than $1 million per year on hydrocephalus related research.

Oh, How I Love Corn!

Check your Commercial Appeal!!

My Daddy's essay- "Why Me, Why Her, Why Us?"- will be in the Commercial Appeal on Sunday January 31!! It will be on the front page of the M Section!!! Check it out! Mommy and I are so excited for him!

Something to look forward to....

A note from my Mommy:

As you all who follow the blog or our dear family who have been on this journey with us know, Nola's first shunt placement was at 4 days old, then shunt revision at 10 months old, then second shunt revision at 20 months. I am sure you can see the pattern.... we seem to have a revision every 10 months. So I am holding my breath! We have been 7 months since the last revision and her last CT showed 99% brain. Everything is going great in terms of the hydrocephalus journey. I guess I am posting this to say- I have 3 more months to hold my breath and we will have beaten the every 10 month pattern!
If we make it without a revision for a year, get your party hats ready because we will have a Revision Free for a Year party!!!

I had the best time at my photo shoot! I was alittle shy at first so Daddy took some pictures with me. It didn't take long for me to warm up and show some personality!! Here are just a few pictures from the shoot. There are more to follow!!

Photo Shoot

I have a photo shoot this morning! I am so excited. Ms. Joanie at LeBonheur called and asked if I would be the face of their new fund raising campaign- "Give a little love to the children of LeBonheur"!!! I am wearing my cute pink shirt, jeans with pink belt, and my snazzy pink high-top converse! I will be holding a plush red heart and will give the photographer my best smile.

Local businesses will be selling the hearts with my picture and the fundraiser saying. Please look for them and purchase ALOT!! They go to help sweet children like me who have to face challenges that no child should ever have to.

Check back for pictures and a list of the local businesses that will be selling the hearts!!

My Cochlear Implants

From Mommy:

Nola has done such a tremendous job with her implants! She lets us know if one of the ear pieces falls off... her ear is so little the ear piece doesn't want to stay on very well. She is learning to listen and hears the different sounds that are all new to her. We are so excited about this journey and thank all of you for coming along with us!!

Pictures to follow soon!!