This blog is to share with others our family's journey with hydrocephalus and hearing loss. We hope this blog gives hope and inspiration to families who may be facing the same diagnosis.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
Now that it is getting warmer outside, I love to play until I cannot play anymore!
Mommy says she likes the picture showing my curls in the back. My hair on the right side still hasn't caught up with the left since it was shaved for my shunt revision surgery back in August. Mommy and Daddy say it will though.
My Mommy says she finally got the pictures loaded from the camera onto the computer. The camera is smarter than she is! Here is the life of Nola in the year 2008.....Enjoy!
I am growing like a weed! I went to Dr. Frizzell and I weigh 22 pounds and am 30 inches long! My Mommy still cannot get over how beautiful and blue my eyes are.
Nola Gracyn's journal is to help others keep up with our little miracle. She was born with congenital hydrocephalus and has had 3 surgeries as a result- shunt placement & 2 revisions. Nola was diagnosed with profound hearing loss in the Summer 2009, and had bi-lateral cochlear implant surgery on December 14. Nola was "turned on" January 6, 2010. Nothing will stop this spunky little thing! She amazes her Mommy & Daddy everyday and charms everyone she meets. We cannot imagine life without her!